Small Town Inertia
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Aletheia Photos : Market Town : Simon : Living with Epilepsy : Brave New World
New and live at Aletheia Photo Collective -
Aletheia Photos : Behind the photo : Market Town : Shaunny
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MARKET TOWN : SIMON : LIVING WITH EPILEPSY : BRAVE NEW WORLD
“Last year was the worst ever really, especially at the gym when I had a seizure and fell off the treadmill and cut my head open, then the time at work, then my hernia, then the pneumonia. At least I was willing to go back to the gym, to try again, I had the guts for that at least.”
The last few months have been a tumultuous time for Simon. His seizures, both Nocturnal and Atonic grew in frequency and severity resulting in numerous injuries.
As a result his visits and stays in hospital increased. His medication was constantly adjusted to try to tackle a situation spiralling ever out of control. Through it all Simon was stoic and strong, refusing to let his epilepsy beat him.
During one of Simon’s visits with his local GP his Doctor informed him of a procedure called V.N.S Vegas Nerve Stimulation or Vegas Nerve Therapy and proposed the option to have a small device implanted within his body that could reduce, even cease his seizures entirely.
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MARKET TOWN : SIMON : LIVING WITH EPILEPSY : BRAVE NEW WORLD
“I went to the Norfolk and Norwich (Hospital) because I had a really bad seizure in bed, I didn’t know I had one but my next door neighbor heard me and phoned my Dad up and my Dad said “Just press the red button on the alarm system” so they did and the ambulance crew came up and then I went to the hospital and I didn’t know anything about it.”
The last few months have been a tumultuous time for Simon. His seizures, both Nocturnal and Atonic grew in frequency and severity resulting in numerous injuries.
As a result his visits and stays in hospital increased. His medication was constantly adjusted to try to tackle a situation spiralling ever out of control. Through it all Simon was stoic and strong, refusing to let his epilepsy beat him.
During one of Simon’s visits with his local GP his Doctor informed him of a procedure called V.N.S Vegas Nerve Stimulation or Vegas Nerve Therapy and proposed the option to have a small device implanted within his body that could reduce, even cease his seizures entirely.
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New story now live @ Small Town Inertia *Preview pages
Market Town : Living with Epilepsy : Simon : Brave New World
The last few months have been a tumultuous time for Simon. His seizures, both Nocturnal and Atonic grew in frequency and severity resulting in numerous injuries.
As a result his visits and stays in hospital increased. His medication was constantly adjusted to try to tackle a situation spiralling ever out of control. Through it all Simon was stoic and strong, refusing to let his epilepsy beat him.
During one of Simon’s visits with his local GP his Doctor informed him of a procedure called V.N.S Vegas Nerve Stimulation or Vegas Nerve Therapy and proposed the option to have a small device implanted within his body that could reduce, even cease his seizures entirely. -
Small Town Inertia Simon : Living with Epilepsy (Moments after suffering an Atonic seizure in 2012.)
“My Doctor asked me if I wanted the V.N.S put into me and I said “Yeah, I do” because if there is a chance it can help cure my epilepsy I want it. To try because this last year I’ve been having so many fits, been in and out of hospital so many times I might as well have it done instead of wasting the Hospitals, the Doctors, nurses and the ambulance mens time. So it’s worth a try isn’t it?
Last year was the worst ever really, especially at the gym when I had a seizure and fell off the treadmill and cut my head open, then the time at work, then my hernia, then the pneumonia. At least I was willing to go back to the gym, to try again, I had the guts for that at least.”
Vagus nerve stimulation (VNS) therapy uses a small generator that is implanted under the skin below the collar bone. This is connected to a lead with two coils at one end. These coils are wrapped around the Vagus nerve at the side of the neck, under the skin, during a small operation.
The generator sends electrical impulses, at intervals, to the Vagus nerve and then to the brain. This helps to lessen how often the seizures happen and how severe the seizures are.
http://www.epilepsy.org.uk/info/treatment/vns-vagus-nerve-stimulation
Full story update coming this week to http://smalltowninertia.co.uk
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Small Town Inertia : Simon October 2012
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Small Town Inertia : Tilney1
Tilney1 struggling with the never ending memory loops, a symptom of his obsessive/schizotypal illness battles through their constant intrusions to continue work on his next work.
Full story coming soon to http://smalltowninertia.co.uk -
Small Town Inertia : Tilney1
Tilney1 struggling with the never ending memory loops, a symptom of his obsessive/schizotypal illness battles through their constant intrusions to continue work on his next work.
Full story coming soon to http://smalltowninertia.co.uk -
Small Town Inertia Simon : Living with Epilepsy
Simon relaxing at home the day his Vagus nerve stimulation unit was switched on for the very first time.Vagus nerve stimulation (VNS) therapy uses a small generator that is implanted under the skin below the collar bone. This is connected to a lead with two coils at one end. These coils are wrapped around the Vagus nerve at the side of the neck, under the skin, during a small operation.
The generator sends electrical impulses, at intervals, to the Vagus nerve and then to the brain. This helps to lessen how often the seizures happen and how severe the seizures are.
http://www.epilepsy.org.uk/info/treatment/vns-vagus-nerve-stimulation
Full story update coming next week to http://smalltowninertia.co.uk -
What an amazing week. A week that’s been the best hard work ever. Of great acts of kindness, for countless shares, #RT’s, of donations, of sharing. YOU are all responsible for this, for changing David’s life, forever.
When I first began documenting David, it was weeks after he came out of hospital, he was in shock and suicidal. 2 and a half years later it’s my belief he was still in that state.
When I approached him with the idea of trying to fundraise for him, to get the SARA he said yes but I could tell he was forcing himself not to believe it might work, for to hope and to be let down again would have been too much for him to bare but I could see flickers of hope in his eyes, in the smallest of fragile smiles.
My unreserved thanks to all of you for helping. This gift to David is so much more than just a text to audio scanner, we’ve shown him the world cares, people cares, that he matters, that he exists, that when his sight died, he remained, he is here with us. That gift money can’t buy.
Last week when I told him we were half way I saw the first real smiles I’ve ever seen upon David’s face… imagine next week when I tell him friends from all over the world have donated, supported and shared and collectively fought to free him from the black.
You are ALL amazing, thank you.
The full credit, I feel goes to David himself, from the depths of what must be hell, he invested his trust in me, to let me into that abyss to document and then share it with you, for passing his story on from the frontlines of his own tragedy and isolation to all of you.
David, this is for you. X
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Small Town Inertia 
Small Town Inertia : New website
After weeks and weeks of hard work by the amazing Mike Hartley the all new Small Town Inertia site is live.
There’s a new look and template (Available for you to use for free also), new full screen slideshow for each story & it’s multi platform. The personal blog posts have moved and will now be found within my portfolio site which go live in a few weeks time.
I really can’t stress and enthuse about this enough, if you yourself need a site built, see Mike, he’s managed to ‘get’ everything I envisioned in my mind, really listened, had genuine patience, designed everything from nothing. He’s a magician!… and one of the nicest guys you are ever want to meet.
Mike may be reached via bigflannel.com
All new stories coming soon.
Small Town Inertia :
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Postcards from the black : David May 2013
I’ve been documenting David since he was blinded as a result of a freak bicycling accident 2 years ago. Before the accident robbed him of his sight (David is 100% blind, zero light perception) he was an avid collector of books and an avid reader. His rooms are filled with books gathering dust, their pages filled with adventures, lives, stories and descriptions of visions and vistas that David is unable to now experience.
Together we can raise the money required to purchase a SARA - Scanning and reading appliance; a device designed solely for those affected with blindness and one able to be used right of of the box.
The SARA will allow David to place his books or any other printed material upon it and then convert the printed text to audio that David will be able to hear. From being unable to read to able to read any printed material in 5 minutes.
https://hopemob.org/s/1j0-postcards-from-the-black-audio-scanner-for-david
Full story to follow. -
Postcards from the black : David May 2013
I’ve been documenting David since he was blinded as a result of a freak bicycling accident 2 years ago. Before the accident robbed him of his sight (David is 100% blind, zero light perception) he was an avid collector of books and an avid reader. His rooms are filled with books gathering dust, their pages filled with adventures, lives, stories and descriptions of visions and vistas that David is unable to now experience.
Together we can raise the money required to purchase a SARA - Scanning and reading appliance; a device designed solely for those affected with blindness and one able to be used right of of the box.
The SARA will allow David to place his books or any other printed material upon it and then convert the printed text to audio that David will be able to hear. From being unable to read to able to read any printed material in 5 minutes.
https://hopemob.org/s/1j0-postcards-from-the-black-audio-scanner-for-david
Full story to follow. -
Postcards from the black (Stills) : @Hope HopeMob : Fundraiser for David
